Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's research involvement group and expert item generation.

ABSTRACT:

Background

There is no validated outcome measure for use in children's palliative care outside sub-Saharan Africa. Stakeholders must be involved in the development of such measures to ensure face and content validity.

Aim

To gain expert stakeholder consensus on items for inclusion in a paediatric palliative care outcome measure to establish face and content validity.

Design

This study was conducted in two phases following Rothrock and COSMIN guidance on patient-reported outcome measure development. Phase 1: Three-round modified Delphi survey to establish consensus on priority items. Phase 2: Item generation meeting with key stakeholders to develop initial measure versions. A young person's advisory group was also consulted on priority outcomes.

Setting and particip

SUBMITTER: Coombes L 

PROVIDER: S-EPMC10657511 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature