Qualitative differences in perspective on children's quality of life between children with cerebral palsy and their parents.

ABSTRACT:

Background

Cerebral palsy (CP) is one of the most common childhood disabilities, impacting many areas of a child's life. Increasingly, quality of life (QOL) measures are used to capture holistic wellbeing of children with CP. However most validated QOL measures for children are based on adult perspective only, with limited focus on child perspective. Conceptual differences between children's and adults' definitions of QOL may reflect different underlying QOL models which contribute to measurement score divergence. This qualitative study investigated the conceptual meaning of QOL for children with CP, comparing child and parent perspectives. Eighteen families completed 8 child interviews and 18 parent interviews. Children (11 boys, 7 girls) represented the spectrum of motor function

SUBMITTER: Swift E 

PROVIDER: S-EPMC10661547 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature