The diagnostic workup for systemic mastocytosis differs from consensus recommendations: Results of a worldwide survey.

ABSTRACT:

Objective

Mastocytosis is a complex disorder affecting various organs. The diagnostic workup can be challenging and requires a multidisciplinary approach including the use of uncommon tests. To assess mastocytosis management around the globe, we conducted the first worldwide online survey for physicians.

Methods

A 21-item questionnaire was sent out to the members of the World Allergy Organization (WAO), the Global Allergy and Asthma European Network (GA²LEN), the Urticaria (UCARE) and Angioedema (ACARE) Centers of Reference and Excellence, the German Society of Allergology and Clinical Immunology (DGAKI), and the European Mast Cell and Basophil Research Network (EMBRN) in April-June 2021.

Results

Across 628 respondents from 79 countries 87.7% and 9.7% of ph

SUBMITTER: Pyatilova P 

PROVIDER: S-EPMC10661596 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature