The Social Construction of Dementia: Implications for Healthcare Experiences of Caregivers and People Living with Dementia.

ABSTRACT: Globally, systems have invested in a variety of dementia care programs in response to the aging population and those who have been diagnosed with dementia. This study is a qualitative secondary analysis of interview data from a larger study investigating stakeholder perceptions of programs that support caregivers and people living with an Alzheimer's Disease or Alzheimer's Disease-related dementia (AD/ADRD) in five North American jurisdictions. This study analyzed interviews with individuals living with an AD/ADRD and caregivers of individuals living with an AD/ADRD (n = 11). Thematic analysis was conducted to understand how the perception of dementia may have shaped their engagement and experience with healthcare systems. Our analysis resulted in three main themes of care users' experienc

SUBMITTER: Farhana N 

PROVIDER: S-EPMC10663651 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature