The Status of Data Management Practices Across German Medical Data Integration Centers: Mixed Methods Study.

ABSTRACT:

Background

In the context of the Medical Informatics Initiative, medical data integration centers (DICs) have implemented complex data flows to transfer routine health care data into research data repositories for secondary use. Data management practices are of importance throughout these processes, and special attention should be given to provenance aspects. Insufficient knowledge can lead to validity risks and reduce the confidence and quality of the processed data. The need to implement maintainable data management practices is undisputed, but there is a great lack of clarity on the status.

Objective

Our study examines the current data management practices throughout the data life cycle within the Medical Informatics in Research and Care in University Medicine (MIRACUM) c

SUBMITTER: Gierend K 

PROVIDER: S-EPMC10666010 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature