Exploring patient and caregiver perceptions of the meaning of the patient partner role: a qualitative study.

ABSTRACT:

Background

The re-conceptualization of patients' and caregivers' roles in research from study participants to co-researchers ("patient partners") has led to growing pains within and outside the research community, such as how to effectively engage patients in research and as part of interdisciplinary teams. To support the growth of more successful research partnerships by developing a shared understanding of how patient partners conceptualize and contribute to their role, this study aimed to explore patient partners' motivations for engagement and understanding of their role.

Methods

We conducted semi-structured interviews with participants (n = 13) of an online survey of activities and impacts of patient engagement in Strategy for Patient-Oriented Research projects. Eligibi

SUBMITTER: Chudyk AM 

PROVIDER: S-EPMC10683322 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature