Incorporating Community Partner Perspectives on eHealth Technology Data Sharing Practices for the California Early Psychosis Intervention Network: Qualitative Focus Group Study With a User-Centered Design Approach.

ABSTRACT:

Background

Increased use of eHealth technology and user data to drive early identification and intervention algorithms in early psychosis (EP) necessitates the implementation of ethical data use practices to increase user acceptability and trust.

Objective

First, the study explored EP community partner perspectives on data sharing best practices, including beliefs, attitudes, and preferences for ethical data sharing and how best to present end-user license agreements (EULAs). Second, we present a test case of adopting a user-centered design approach to develop a EULA protocol consistent with community partner perspectives and priorities.

Methods

We conducted an exploratory, qualitative, and focus group-based study exploring mental health data sharing and privacy prefe

SUBMITTER: Tully LM 

PROVIDER: S-EPMC10685281 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature