Clinician perspectives on barriers and solutions to symptom management in cystic fibrosis.

ABSTRACT: People living with cystic fibrosis (PLwCF) experience high symptom burden. 146 clinicians completed online surveys regarding barriers and solutions to symptom management between September and October 2020. The surveys contained both closed-ended and free-text entries. The symptom management specialists that CF clinicians most wished to consult included mental health (88, 65%), palliative care (59, 41%), and pain specialists (48, 33%). Barriers to symptom management included concerns about controlled substances prescribed for symptom control causing addiction and precluding transplantation, a lack of trust and collaboration among clinical specialties, a lack of symptom management specialists with CF expertise, and a worry about the affordability of specialist-level symptom management care.

SUBMITTER: Smirnova N 

PROVIDER: S-EPMC10687299 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature