What matters to you? Engaging with children in the James Lind Alliance Children's Cancer Priority Setting Partnership.

ABSTRACT:

Background

Previous priority setting exercises have sought to involve children, but in the final reporting, it is evident that few children had been engaged through the process. A primary aim in the Children's Cancer Priority Setting Partnership was to find out from children what they want research to focus on. We report on our experience to inform methods of engagement with children in future James Lind Alliance Priority Setting Partnerships and similar exercises.

Methods

We followed the James Lind Alliance process, collecting and shortlisting questions via online surveys with adult survivors of childhood cancer, carers, and professionals, and holding a final workshop. Alongside this, a parallel process to collect and prioritise questions from children was undertaken. We cr

SUBMITTER: Aldiss S 

PROVIDER: S-EPMC10688066 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature