Supportive care decision-making processes of persons with dementia and their caregivers.

ABSTRACT: Little is known about the decision-making processes around seeking more supportive care for dementia. Persons with dementia are often left out of decision-making regarding seeking more supportive care as their dementia progresses. This paper provides a description of findings from the Decision-making in Alzheimer's Research project (DMAR) investigating the process of decision-making about transitions to more supportive care. We conducted 61 qualitative interviews with two stakeholder groups: 24 persons with dementia, and 37 informal caregivers to explore supportive care decisions and associated decision-making factors from the perspectives of persons with dementia and their caregivers. We identified four main decisions that persons with dementia and their informal caregivers played a role

SUBMITTER: Taylor JO 

PROVIDER: S-EPMC10688994 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature