Ethical considerations for biobanking and use of genomics data in Africa: a narrative review.

ABSTRACT:

Background

Biobanking and genomic research requires collection and storage of human tissue from study participants. From participants' perspectives within the African context, this can be associated with fears and misgivings due to a myriad of factors including myths and mistrust of researchers. From the researchers angle ethical dilemmas may arise especially with consenting and sample reuse during storage. The aim of this paper was to explore these ethical considerations in the establishment and conduct of biobanking and genomic studies in Africa.

Methods

We conducted a narrative synthesis following a comprehensive search of nine (9) databases and grey literature. All primary research study designs were eligible for inclusion as well as both quantitative and qualitative evi

SUBMITTER: Amoakoh-Coleman M 

PROVIDER: S-EPMC10699036 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature