Infants, children, youth and young adults with a serious illness in British Columbia: a population-based analysis using linked administrative data.

ABSTRACT:

Background

Pediatric palliative care aims to improve quality of life among infants, children, youth and young adults with serious illnesses, sometimes over years, but estimates of infants, children, youth and young adults requiring pediatric palliative care have been highly variable and need refinement. We sought to describe this population in British Columbia and identify clinical instability to inform program planning in pediatric palliative care.

Methods

We conducted a population-based analysis using linked administrative health data from 2012/13 to 2016/17. We applied a coding framework validated in the United Kingdom to estimate the number of BC residents aged 0-25 years with serious illnesses and to identify 5 clinical stages. We describe demographics, estimate prevale

SUBMITTER: Noriega EC 

PROVIDER: S-EPMC10699435 | biostudies-literature | 2023 Nov-Dec

REPOSITORIES: biostudies-literature