Delineating family needs in the transition from hospital to home for children with medical complexity: part 2, a phenomenological study.

ABSTRACT:

Background

A systematic literature review on the transition from hospital-to-home (H2H) of families with a child with medical complexity (CMC), resulted in nine overarching themes. These demonstrated common needs and experiences despite the widely differing CMC diagnoses and family characteristics. However, none of the reported studies was conducted in the Netherlands, which hampers the creation of a tailored H2H care pathway, deemed essential for our recently established Transitional Care Unit in the Netherlands: the 'Jeroen Pit Huis'. Therefore, the aim of this study was to gain a deeper understanding of the needs and experiences of Dutch CMC parents on H2H transition and integrate these insights with the literature review into an evidence-based H2H care pathway for CMC and their

SUBMITTER: van de Riet L 

PROVIDER: S-EPMC10714565 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature