Bridging the gap: returning genetic results to indigenous communities in Latin America.

ABSTRACT: In response to inequality in access to genomics research, efforts are underway to include underrepresented minorities, but explicit (and enforcing) guidelines are mostly targeted toward the Global North. In this work, we elaborate on the need to return scientific results to indigenous communities, reporting the actions we have taken in a recent genomic study with Mapuche communities in Chile. Our approach acknowledged the social dynamics perpetuating colonial hierarchies. We framed genetic results to empower indigenous knowledge and communities' history and identities. A fundamental step in our strategy has been sharing the results with the communities before publishing the scientific paper, which allowed us to incorporate community perspectives. We faced the challenge of translating genet

SUBMITTER: Arango-Isaza E 

PROVIDER: S-EPMC10715051 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature