Caring for persons with Dementia: a qualitative study of the needs of carers following care recipient discharge from hospital.

ABSTRACT:

Background

A randomised clinical trial titled the Carer End of Life Planning Intervention (CELPI) in people dying with dementia evaluated the effect of carer education and support about palliative care on care recipient outcomes. We present a pre-planned qualitative analysis of data collected during the CELPI trial in which needs of carers randomised to the study intervention group were assessed using a novel instrument (Carer Needs Directed Assessment in Dementia (CANDID). This tool aimed to identify carers' perceptions of their own and their care-recipients' needs and is an important step in identifying support provision for dementia-specific, palliative cares services upon hospital discharge.

Methods

The CANDID tool was designed to identify the needs and experiences of pr

SUBMITTER: Du Preez J 

PROVIDER: S-EPMC10717287 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature