A Psychosocial Care Model for Families Affected by Congenital Heart Disease.

ABSTRACT:

Objectives

To develop a model of family-based psychosocial care for congenital heart disease (CHD).

Design

Qualitative study using crowdsourced data collected from parents of young children with CHD who received care across 42 hospitals.

Setting

Yammer, a social networking platform used to facilitate online crowdsourcing and qualitative data collection.

Subjects

Geographically diverse sample of 100 parents (72 mothers and 28 fathers) of young children with CHD.

Interventions

None.

Measurements and main results

Parents joined a private group on Yammer and responded to 37 open-ended study questions over a 6-month period. Qualitative data were coded and analyzed using an iterative process. Three broad themes corresponding to pillars of family-based p

SUBMITTER: Driscoll CFB 

PROVIDER: S-EPMC10721719 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature