Participatory approaches for developing a practical handbook integrating health information for supporting individuals with mild cognitive impairment and their families.

ABSTRACT:

Aim

This study aimed to develop a patient-centred handbook that integrates information on lifestyle modifications and psychological support strategies for individuals with mild cognitive impairment (MCI). This article provides a comprehensive record of the development process.

Methods

We adopted a participatory research model for the methodology, which comprised five phases and involved an interdisciplinary team specializing in dementia and health literacy. Data were initially collected via interviews conducted among patients with MCI (n = 5) and their families (n = 5). Given the study's preliminary nature, depth and richness of the qualitative data were the key concerns for determining the sample size, rather than broad generalizability. We ensured the inclusion of diverse

SUBMITTER: Kuroda Y 

PROVIDER: S-EPMC10726060 | biostudies-literature | 2023 Sep

REPOSITORIES: biostudies-literature