Operationalizing the principles of patient engagement through a Patient Advisory Council: Lessons and recommendations.

ABSTRACT:

Background

Inclusiveness, Support, Mutual Respect and Co-Build are the four pillars of patient engagement according to the Strategy for Patient-Oriented Research (SPOR). The aim of this manuscript is to describe the operationalization of these principles through the creation of a Patient Advisory Council (PAC) for the research study titled 'Re-Purposing the Ordering of Routine laboratory Tests (RePORT)'.

Methods

Researchers collaborated with the Alberta SPOR SUPPORT Unit (AbSPORU) Patient Engagement Team to create a diverse PAC. Recruitment was intentional and included multiple perspectives and experiences. PAC meetings were held monthly, and patient research partners received support to function as co-chairs of the PAC. Patient research partners were offered training, suppo

SUBMITTER: Nielssen I 

PROVIDER: S-EPMC10726262 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature