Understanding the value of brain donation for research to donors, next-of-kin and clinicians: A systematic review.

ABSTRACT:

Purpose

Post-mortem brain donation affords the opportunity to characterise disease by exploring global neuropathological changes. Such opportunities are essential to progress knowledge of CNS tumours such as Glioblastoma. A comprehensive understanding of the experience of consenting to brain donation is crucial to maximising consent rates while providing patient-centred care. This review aimed to synthesise the reported facilitators and barriers according to potential donors, next-of-kin (NOK) and clinician respondents.

Design

Database searches included Embase, Medline, PsycINFO, Psychology and Behavioural Science and Scopus. Search terms focused on motivations, attitudes and psychosocial experiences of brain donation. Exclusions included organ transplantation and brain deat

SUBMITTER: Griffin CP 

PROVIDER: S-EPMC10732432 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature