Participatory research with carers: A systematic review and narrative synthesis.

ABSTRACT:

Introduction

As patient and public involvement (PPI) in research has become increasingly common, research-based recommendations on its principles and impacts have been established. The specifics of conducting PPI are likely to differ when involving different groups. Family/informal carers for those with health conditions or disabilities have a lot to contribute to research, but instances of their involvement have yet to be reviewed.

Objective

To systematically review and synthesize studies where family/informal carers have been involved in the research process, to develop an understanding of the benefits, barriers and facilitating factors.

Methods

A search of five electronic databases was conducted using a combination of terms relating to carers, involvement and resea

SUBMITTER: Bowness B 

PROVIDER: S-EPMC10734554 | biostudies-literature | 2024 Feb

REPOSITORIES: biostudies-literature