Challenges and recommendations for advancing respite care for families of children and youth with special health care needs: A qualitative exploration.

ABSTRACT:

Introduction

Caring for children and youth with special health care needs (CYSHCN) is a significant undertaking for families. While respite care is intended to address this burden, demand continues to exceed supply. Exploring the perspectives of respite service providers (SPs) and stakeholders (SKs) provides unique insight into families' needs and respite care systems.

Methods

We conducted semistructured interviews with 41 respite care SPs and SKs across four Canadian provinces to ascertain perspectives on current and ideal respite care for families of CYSHCN. The analysis included delineating units of meaning from the data, clustering units of meaning to form thematic statements and extracting themes. The second-level analysis involved applying themes and subthemes to cross

SUBMITTER: Woodgate RL 

PROVIDER: S-EPMC10753137 | biostudies-literature | 2024 Feb

REPOSITORIES: biostudies-literature