The burden of myasthenia gravis - highlighting the impact on family planning and the role of social support.

ABSTRACT:

Background

Myasthenia gravis (MG) is a rare autoimmune disease and chronic condition that necessitates specialized care. Patients experience a significant burden of disease affecting various aspects of their lives. The aim of this study was to investigate the impact of MG on family planning, challenges associated with pregnancy, childcare responsibilities and the extent to which MG patients perceive and utilize social support.

Methods

This analysis used data from our main data of a large cross-sectional study built on a questionnaire-based survey encompassing 1,660 MG patients and members of the German Myasthenia Association (Deutsche Myasthenie Gesellschaft), and focused on sociodemographic, clinical and family planning relevant data points.

Results

Decisions regardi

SUBMITTER: Stein M 

PROVIDER: S-EPMC10755901 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature