Shepherding parents to prepare for end-of-life decision-making: a critical phenomenological study of the communication approach of paediatricians caring for children with life-limiting conditions in Australia.

ABSTRACT:

Background/objectives

Shared decision-making is widely accepted as the best approach for end-of-life decision-making for children with life-limiting conditions. Both paediatricians and parents find benefit in preparing for such decisions. However, little detail is known about this preparatory process. This study aims to explore how paediatricians prepare parents for end-of-life decision-making for a child with a life-limiting condition using clinical simulation.

Design

Individual, semistructured, post-simulation qualitative interviews of paediatricians and parent-actors.

Setting

Acute intensive and long-term outpatient paediatric care in Victoria, Australia.

Participants

18 purposively sampled paediatricians who treat children with life-limiting conditions and

SUBMITTER: Vemuri S 

PROVIDER: S-EPMC10759114 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature