Mapping a research-advocacy-policy agenda on human rights and albinism: a mixed methods project.

ABSTRACT:

Background

Persons with albinism face challenges to their wellbeing, safety, and security, ranging from vision impairment and skin cancer to stigma and discrimination. In some regions, they also face human rights atrocities including mutilation and murder. Research on human rights and albinism is a relatively new field that has gained momentum since the United Nations appointment of an Independent Expert on the enjoyment of human rights by persons with albinism. In this paper, we present the results of a mixed methods study undertaken to identify priorities for research, advocacy, and policy on albinism and human rights.

Methods

The first component was a synthesis of peer-reviewed and grey literatures at the nexus of albinism, spiritual/cultural beliefs and practices, and hu

SUBMITTER: Reimer-Kirkham S 

PROVIDER: S-EPMC10762980 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature