Community engagement in genetics and genomics research: a qualitative study of the perspectives of genetics and genomics researchers in Uganda.

ABSTRACT:

Background

Generally, there is unanimity about the value of community engagement in health-related research. There is also a growing tendency to view genetics and genomics research (GGR) as a special category of research, the conduct of which including community engagement (CE) as needing additional caution. One of the motivations of this study was to establish how differently if at all, we should think about CE in GGR.

Aim

To assess the perspectives of genetics and genomics researchers in Uganda on CE in GGR.

Method

A cross-sectional qualitative study was conducted at Makerere University and Uganda Virus Research Institute. Twenty-five individuals participated, the majority being male (sixteen). Participants included nineteen genetics and genomics researchers (resear

SUBMITTER: Nankya H 

PROVIDER: S-EPMC10763360 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature