Most people share genetic test results with relatives even if the findings are normal: Family communication in a diverse population.

ABSTRACT:

Purpose

With increasing utilization of genetic testing, sharing genetic information can become part of general family health communication while providing biological relatives with important information about their own genetic risk. Importantly, little is known about motivations for and barriers to family communication of genetic information in historically underserved populations.

Methods

Using mixed methods, we explored patient experiences with family communication in a study population of English- and Spanish-speaking adults aged 18 to 49 years, enriched for participants from historically underserved backgrounds. Risk screening for hereditary cancer guided genetic testing for cancer risk genes and other medically actionable findings.

Results

Most participants overa

SUBMITTER: Hunter JE 

PROVIDER: S-EPMC10766857 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature