Autism community priorities in diverse low-resource settings: A country-wide scoping exercise in India.

ABSTRACT:

Lay abstract

It is vital to directly engage with the autism community in order to develop better services and drive the research agenda. While some studies in high-income countries have mapped the priorities of the autism community, there is a severe dearth of such efforts in the global south. Five million autistic individuals are estimated to live in India alone, and there has been little effort to map their priorities. Moreover, studies in high-income countries focused largely on research priorities, and not so much on skills training and interventions. Keeping these needs in mind, we conducted an online survey followed by an in-depth conversation with parents of autistic children and autistic adults drawn from across India. We found that the respondents reported self-help skills

SUBMITTER: Dey I 

PROVIDER: S-EPMC10771024 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature