'It would help people to help me': Acceptability of digital phenotyping among young people with visual impairment and their families.

ABSTRACT:

Objectives

To explore the acceptability of an eHealth App for vision-related monitoring and symptom reporting among young people with a visual impairment and their parents.

Methods

Qualitative investigation using virtual semi-structured focus groups (via Zoom software) of seven young participants with a genetic eye disorder including inherited retinal disease and structural eye abnormalities (e.g. microphthalmia), and 7 parents; all recruited from ocular genetic clinics at Moorfields Eye Hospital. Audio transcripts were analysed using thematic analysis.

Results

Data were coded into six key themes: (1) increased involvement in care, (2) opportunity for less hospital-centric care, (3) better representation of visual impairment in a real-world setting, (4) trust in a rep

SUBMITTER: Higgins B 

PROVIDER: S-EPMC10771050 | biostudies-literature | 2024 Jan-Dec

REPOSITORIES: biostudies-literature