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Dataset Information

Supporting self-management for patients with Interstitial Lung Diseases: Utility and acceptability of digital devices.


ABSTRACT:

Introduction

Patients diagnosed with Interstitial Lung Diseases (ILD) use devices to self-monitor their health and well-being. Little is known about the range of devices, selection, frequency and terms of use and overall utility. We sought to quantify patients' usage and experiences with home digital devices, and further evaluate their perceived utility and barriers to adaptation.

Methods

A team of expert clinicians and patient partners interested in self-management approaches designed a 48-question cross-sectional electronic survey; specifically targeted at individuals diagnosed with ILD. The survey was critically appraised by the interdisciplinary self-management group at Royal Devon University Hospitals NHS Foundation Trust during a 6-month validation process. The survey

SUBMITTER: Althobiani MA 

PROVIDER: S-EPMC10773949 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature