Administrative Databases: Friend or Foe in Paediatric Cardiomyopathy.

ABSTRACT:

Background

Cardiomyopathy (CM) is a rare childhood disease associated with morbidity and mortality. Limited data exist on paediatric CM in Canada. Given the rare nature, single-centre studies are not sufficiently powered to address important questions. Therefore, administrative health data may serve as a resource for the study of childhood CM. The goal of this study was to validate the accuracy of International Classification of Diseases (ICD)-based algorithms to identify paediatric CM in health databases using a clinical registry as the gold standard.

Methods

The clinical registry was compiled from outpatient and inpatient records at the Stollery Children's Hospital (January 1, 2013, to December 31, 2021). Patients were categorized as having CM or screened without CM. Data

SUBMITTER: Conway J 

PROVIDER: S-EPMC10777199 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature