Evaluating the pragmatic characteristics of advance care planning outcome measures in dementia clinical trials: A scoping review.

ABSTRACT:

Background

Advance care planning (ACP) is a process that involves discussing a person's goals, values, and preferences; it is particularly important for persons living with dementia (PLWD) given that dementia is incurable and progressive. To ensure results that will impact real-world practices, ACP outcome measures must be psychometrically strong, meaningful to key partners, and pragmatic to collect. Therefore, we conducted a scoping review of outcome measures utilized in ACP randomized controlled clinical trials (RCTs) enrolling PLWD or their care partners and evaluated their pragmatic characteristics.

Methods

We searched MEDLINE/PubMed, EMBASE, CINAHL, PsycINFO, and Web of Science for peer-reviewed ACP RCTs enrolling PLWD or their care partners from 2011 to 2021. We abstra

SUBMITTER: Gabbard JL 

PROVIDER: S-EPMC10787044 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature