A qualitative study of pain and related symptoms experienced by people with Ehlers-Danlos syndromes.

ABSTRACT:

Introduction

Individuals with Ehlers-Danlos syndromes (EDS) often have complex and multi-faceted symptoms across the lifespan. Pain and the related symptoms of fatigue and sleep disorders are common. The objective of this qualitative study was to understand how participants manage their pain and related symptoms.

Methods

The design was a qualitative thematic content analysis. Twenty-eight interviews were conducted to collect data from individuals who were participants in a prior quantitative longitudinal study. A semi-structured interview guide was designed to focus on and understand the trajectory of pain, sleep, fatigue, and general function. The interview continued with questions about coping mechanisms and obstacles to maintaining a sense of well-being.

Results

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SUBMITTER: Schubart JR 

PROVIDER: S-EPMC10792024 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature