What guidance exists to support patient partner compensation practices? A scoping review of available policies and guidelines.

ABSTRACT:

Background

An integral aspect of patient engagement in research, also known as patient and public involvement, is appropriately recognising patient partners for their contributions through compensation (e.g., coauthorship, honoraria). Despite known benefits to compensating patient partners, our previous work suggested compensation is rarely reported and researchers perceive a lack of guidance on this issue. To address this gap, we identified and summarised available guidance and policy documents for patient partner compensation.

Methods

We conducted this scoping review in accordance with methods suggested by the JBI. We searched the grey literature (Google, Google Scholar) in March 2022 and Overton (an international database of policy documents) in April 2022. We included ar

SUBMITTER: Fox G 

PROVIDER: S-EPMC10795087 | biostudies-literature | 2024 Feb

REPOSITORIES: biostudies-literature