A powerful partnership: researchers and patients working together to develop a patient-facing summary of clinical trial outcome data.

ABSTRACT:

Objective

Availability of easy-to-understand patient-reported outcome (PRO) trial data may help individuals make more informed healthcare decisions. Easily interpretable, patient-centric PRO data summaries and visualizations are therefore needed. This three-stage study explored graphical format preferences, understanding, and interpretability of clinical trial PRO data presented to people with prostate cancer (PC).

Materials and methods

A 7-day online survey exploring people with PC's preferences for different PRO data presentations (stage 1; n = 30) informed development of a draft plain-language resource sheet containing PRO data. After refining for clarity during cognitive debriefing interviews (stage 2; n = 18), the final resource sheet was circulated to people with PC fo

SUBMITTER: Ruzich E 

PROVIDER: S-EPMC10797263 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature