Participant-guided development of bilingual genomic educational infographics for Electronic Medical Records and Genomics Phase IV study.

ABSTRACT:

Objective

Developing targeted, culturally competent educational materials is critical for participant understanding of engagement in a large genomic study that uses computational pipelines to produce genome-informed risk assessments.

Materials and methods

Guided by the Smerecnik framework that theorizes understanding of multifactorial genetic disease through 3 knowledge types, we developed English and Spanish infographics for individuals enrolled in the Electronic Medical Records and Genomics Network. Infographics were developed to explain concepts in lay language and visualizations. We conducted iterative sessions using a modified "think-aloud" process with 10 participants (6 English, 4 Spanish-speaking) to explore comprehension of and attitudes towards the infographics.

SUBMITTER: Casillan A 

PROVIDER: S-EPMC10797276 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature