Parents' experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis.

ABSTRACT:

Background

Parental involvement in the decision-making processes about medical treatment for children with life-limiting conditions is recognised as good practice. Previous research highlighted factors affecting the decision-making process, but little is known about how parents experience their participation.

Aim

To explore how parents experience their participation in the process of decision-making about treatment and future care for their children with life-limiting conditions.

Design

A systematically constructed review using narrative synthesis. The PRISMA guidelines were followed to report the findings. Databases Medline, EMBASE, SCOPUS, CINAHL and PsycINFO were searched up to December 2023. The study protocol was registered at PROSPERO (RN CRD42021215863).

Res

SUBMITTER: Polakova K 

PROVIDER: S-EPMC10798032 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature