Patient and Caregiver Perspectives on Their Experiences With Crohn's Perianal Fistulas.

ABSTRACT:

Background

Little is known about patients' perception of care and management of Crohn's perianal fistulas (CPF). This study was conducted to understand US patient and caregiver attitudes and challenges to CPF care.

Methods

Patients with CPF and caregivers of patients with CPF completed a 36-question survey about their perceptions and challenges regarding the diagnosis, treatment, and overall management of CPF. Patients/caregivers were recruited via online Crohn's and fistula support group websites and forums and via their gastroenterologists (GEs) and surgeons from October 2020 through January 2021.

Results

The survey was completed by 96 patients and 54 caregivers. Respondents reported over 60% and 14%-23% of CPF were diagnosed and treated by a GE or surgeon, respecti

SUBMITTER: Stacy S 

PROVIDER: S-EPMC10803099 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature