Cohort profile: the National Congenital Anomaly Registration Dataset in England.

ABSTRACT:

Purpose

The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS), part of National Disease Registration Service in National Health Service England, quality assures, curates and analyses individual data on the pregnancies, fetuses, babies, children and adults with congenital anomalies and rare diseases across England. The congenital anomaly (CA) register provides a resource for patients and their families, clinicians, researchers and public health professionals in furthering the understanding of CAs.

Participants

NCARDRS registers CAs occurring in babies born alive and stillborn, fetal losses and terminations in England. NCARDRS collects data from secondary and tertiary healthcare providers, private providers and laboratories covering fetal medicine, ma

SUBMITTER: Broughan JM 

PROVIDER: S-EPMC10806630 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature