Baseline characteristics of children in the International PANS Registry (IPR) Epidemiology Study.

ABSTRACT:

Purpose

The International PANS Registry (IPR) Epidemiology Study is a registry-based, longitudinal study. We designed this study to improve phenotyping and characterisation of children with paediatric acute-onset neuropsychiatric syndrome (PANS) and PANS-like features and facilitate multidisciplinary and translational health research. This cohort provides new opportunities to address unresolved research questions related to the broad spectrum of heterogenous PANS-like conditions.

Participants

Inclusion in the IPR Epidemiology Study remains open indefinitely via IPR enrolment online. Participants include children with PANS or who have PANS-like features and their healthy siblings. We collected cross-sectional survey data based on parent report, including details on phenotypic

SUBMITTER: Masterson EE 

PROVIDER: S-EPMC10824037 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature