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Dataset Information

Multilevel barriers and facilitators to widespread use of preconception carrier screening in the United States.


ABSTRACT:

Purpose

Although preconception reproductive genetic carrier screening (RGCS) is preferred to screening during pregnancy, population-wide preconception screening is not routinely performed in the United States. We explored the multilevel barriers to the widespread adoption of preconception RGCS in the United States via key informant interviews.

Methods

Semi-structured virtual video interviews were conducted with 29 informants with a breadth of professional expertise between May and October 2022. Data collection and qualitative analyses were guided by the Consolidated Framework for Implementation Research and socioecological model. Analysis focused on identifying barriers to delivering preconception RGCS at and across different levels of health care and exploring potential fac

SUBMITTER: Hull LE 

PROVIDER: S-EPMC10825062 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature