Holding back in communications with clinicians: Patient and care partner perspectives in Parkinson's disease.

ABSTRACT:

Objectives

To describe how patients with Parkinson's disease (PD) and care partners choose to share or withhold information from clinicians.

Methods

This is a qualitative, descriptive study nested within a multisite, randomized clinical trial of outpatient palliative care compared to standard neurologic care for PD. Interviews with patients (n = 30) and care partners (n = 30) explored experiences communicating with neurology clinicians. Thematic analyses identified themes relevant to patient-care partner-clinician communication.

Results

There were four themes relevant to sharing and/or withholding information from clinicians: (1) Suppressing Concerns During Visits, (2) Care Partner Awareness of Patients' Communication Barriers due to Cognitive Impairment

SUBMITTER: Ayele R 

PROVIDER: S-EPMC10832496 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature