Exploring fathers' experiences of caring for a child with complex care needs through ethnography and arts-based methodologies.

ABSTRACT:

Background

Although the number of children living with complex care needs (CCN) is increasing worldwide, there is limited data on the experience of fathers caring for children with CCN. This paper reports on findings specific to fathers' experiences of caring for their child with CCN and highlights recommendations provided for parents of children with CCN, service providers, and policymakers. The findings emerged from a larger study designed to examine how Canadian families of children with CCN participate in society.

Methods

We used the qualitative research approach of ethnography and arts-based methodologies (ecomaps and photovoice) as well as purposive and snowball sampling techniques. Four parents were engaged as advisors and twenty-nine fathers participated in interview

SUBMITTER: Woodgate RL 

PROVIDER: S-EPMC10835869 | biostudies-literature | 2024 Feb

REPOSITORIES: biostudies-literature