Palliative Care in Nursing Home Residents with Young-Onset Dementia: Professional and Family Caregiver Perspectives.

ABSTRACT:

Background

The evidence underpinning palliative care in dementia is mostly based on research in older populations. Little is known about the palliative care needs of people with young-onset dementia (YOD).

Objective

To describe palliative care practices including advance care planning (ACP) in people with YOD residing in Dutch nursing homes.

Methods

The study presents baseline questionnaire data from an observational cohort study. Physicians, family caregivers, and nursing staff completed questionnaires about 185 residents with YOD. The questionnaires included items on sociodemographics, quality of life measured with the quality of life in late-stage dementia (QUALID) scale, dementia-related somatic health problems, symptoms, pain medication, psychotropic drugs, and A

SUBMITTER: Maters J 

PROVIDER: S-EPMC10836558 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature