A qualitative study on opportunities to improve research engagement and inclusion of Black adults with systemic lupus erythematosus.

ABSTRACT: In response to racial inequities in systemic lupus erythematosus (SLE), we aimed to identify practical recommendations for increasing engagement and inclusion of Black adults in SLE research. We used a qualitative, interpretive description approach and recruited 30 Black adults diagnosed with SLE in Michigan to participate in semi-structured interviews. Theme development focused on what factors influenced research perceptions and how research did not meet participant needs and expectations. We developed five main themes: (1) Ethical and equitable research. Participants shared how the impacts of past and present-day racism impacted their willingness to participate in research. (2) Trusting researchers to conduct studies and translate findings to health care. Participants had c

SUBMITTER: Summerville J 

PROVIDER: S-EPMC10842866 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature