Experiences Among Patients With Cystic Fibrosis in the MucoExocet Study of Using Connected Devices for the Management of Pulmonary Exacerbations: Grounded Theory Qualitative Research.

ABSTRACT:

Background

Early detection of pulmonary exacerbations (PEx) in patients with cystic fibrosis is important to quickly trigger treatment and reduce respiratory damage. An intervention was designed in the frame of the MucoExocet research study providing patients with cystic fibrosis with connected devices and educating them to detect and react to their early signs of PEx.

Objective

This study aims to identify the contributions and conditions of home monitoring in relation to their care teams from the users' point of view to detect PEx early and treat it. This study focused on the patients' experiences as the first and main users of home monitoring.

Methods

A qualitative study was conducted to explore patients' and professionals' experiences with the intervention. We inte

SUBMITTER: Morsa M 

PROVIDER: S-EPMC10848132 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature