Case Ascertainment of Sickle Cell Disease Using Surveillance or Single Administrative Database Case Definitions.

ABSTRACT:

Objective

In the absence of access to surveillance system data, single-source administrative databases are often used to study health care utilization and health outcomes among people with sickle cell disease (SCD). We compared the case definitions from single-source administrative databases with a surveillance case definition to identify people with SCD.

Materials and methods

We used data from Sickle Cell Data Collection programs in California and Georgia (2016-2018). The surveillance case definition for SCD developed for the Sickle Cell Data Collection programs uses multiple databases, including newborn screening, discharge databases, state Medicaid programs, vital records, and clinic data. Case definitions for SCD in single-source administrative databases varied by databa

SUBMITTER: Reeves SL 

PROVIDER: S-EPMC10851905 | biostudies-literature | 2024 Mar-Apr

REPOSITORIES: biostudies-literature