Parents' attitudes towards research involving genome sequencing of their healthy children: a qualitative study.

ABSTRACT: With widespread genomic sequencing research efforts, there is increasing impetus to return results to participants. Parents of healthy children are increasingly asked to participate in genomic research, yet there are limited studies of parental expectations for the return of results amongst healthy children. We explored parental attitudes towards their healthy children's participation in genomic research and expectations for return of results. Data collection involved semi-structured telephone interviews with parents of healthy children participating in a primary care research network. Transcripts were analyzed thematically using constant comparison. A total of 26 parents were interviewed: 22 were female, 19 self-reported as White/European, and 20 were aged 30-39. Three themes emerged: (1)

SUBMITTER: Di Carlo C 

PROVIDER: S-EPMC10853502 | biostudies-literature | 2024 Feb

REPOSITORIES: biostudies-literature