User appraisal of a booklet for advance care planning in multiple sclerosis: a multicenter, qualitative Italian study.

ABSTRACT:

Objectives

Implementation of advance care planning (ACP) in people with progressive multiple sclerosis (PwPMS) is limited. We aimed to involve users (PwPMS, significant others, and healthcare professionals involved in PwPMS care) in the evaluation and refinement of a booklet to be used during the ACP conversations.

Methods

This qualitative study consisted of cognitive interviews with PwPMS and significant others and a focus group with healthcare professionals from three Italian centers. We analyzed the interviews using the framework method and the focus group using thematic analysis.

Results

We interviewed 10 PwPMS (3 women; median age 54 years; median Expanded Disability Status Scale score 6.0) and three significant others (2 women; 2 spouses and one daughter). The a

SUBMITTER: Giordano A 

PROVIDER: S-EPMC10858142 | biostudies-literature | 2024 Mar

REPOSITORIES: biostudies-literature