Hospice Care Experiences Among Decedents With Huntington's Disease.

ABSTRACT:

Context

Little is known about the hospice care experiences of those with Huntington's Disease (HD).

Objectives

Our objective is to provide the first national characterization of hospice care quality for patients with HD and their families.

Methods

We used national Consumer Assessment of Healthcare Providers and Systems (CAHPS) Hospice Survey data to examine caregiver-reported experiences of hospice care. We analyzed data from 550 caregivers of patients with HD and 1,098,819 caregivers of patients without HD who died January 2016-June 2019 while receiving hospice care from 3,845 hospices nationwide. Outcomes (on a 0-100 scale) were eight publicly-reported quality of care measures, and four individual survey items about receiving help for specific symptoms. Analyses wer

SUBMITTER: Parast L 

PROVIDER: S-EPMC10859183 | biostudies-literature | 2022 Jul

REPOSITORIES: biostudies-literature