Community perspectives on the magnitude of Xeroderma pigmentosum and care-seeking practices in Micheweni district, Pemba: a mixed-methods cross-sectional study.

ABSTRACT:

Objectives

To determine the community's perception on the magnitude of Xeroderma pigmentosum (XP) disease and healthcare-seeking practices in Micheweni, Pemba in response to the public widespread information on the increased burden of the disease.

Design

Mixed-methods cross-sectional study.

Setting

Micheweni district, Pemba.

Participants

211 male and female adults in the household survey, three caretakers/parents of patients with XP in the case study, 20 key community leaders/influential people and health workers in in-depth interviews and 50 community members and other leaders in six focus groups.

Results

This study has revealed that XP disease exists in few families of which some of them have more than one child affected. The record review showed that

SUBMITTER: Matemba LE 

PROVIDER: S-EPMC10862287 | biostudies-literature | 2024 Feb

REPOSITORIES: biostudies-literature